We went back for clinic on Monday and Jake was well enough to proceed with treatment. His ANC (neutraphil) was around 1900. It was 200 last week and therefore he was not well enough. They won't continue with treatment unless you can be above 500.
We were in the clinic from 8 AM to 4:30 PM. Jake had get 2 hours of fluids via IV before they gave him Cyclophosphamide. Then he had to have another 4 hours of IV fluids afterwards. As if that wasn't enough, he also received a spinal tap. They weighed his diaper to make sure he was "going." We ate *ok* hospital food and did tons of sand art. Jake also played with a little girl named Chloe that had kidney cancer when she was 3 years old. She is cured and was there for a checkup.
We also need to give him a shot in the leg this week and next week. Mark has been selected to do this since I'm afraid of needles. Poor dado. Jake freaked out when he saw Mark come at him with gloves since only Rochelle, his nurse, wears gloves to access his port. It had a faint cry of "no dado, not you too." We hate that Jake has to go through this but at least we still have our beautiful baby boy.
Mark said something that his so true and a relief. Jake is going to be Jake no matter what happens to him. He won't let the disease change him. Even when he is at his sickest, he wants to be happy. He is always curious about everything and elates when he discovers something new. He is a determined boy (aka stubborn), which he gets from me.
Thank you all for your continued support and loving words.
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