It's been almost a month since I've posted an update. I apologize. After our last visit to the clinic, Jake has had almost 2 weeks of reprieve from treatment. During those weeks Jake had a chance to live the life of a normal child free of drugs and hospitals. His verbal skills have skyrocketed and we can't believe how much he picks up.
We were in Panera eating his favorite chicken soup and watching the Crown Center fountains. The water was dancing and then it stopped. Jake asked me "where did the water go?" Then before I could reply the water came back up and Jake exclaimed "it was down there!" as he was pointing to the ground. Jake wanted to touch Mark's glasses. Mark told him to be careful since the glasses can break. Jake replied, "it's breakable." Now we have never tought him the word breakable.
Jake is a kid on the move. He hates to sit still and always wants to do something. He can communicate quite well so he is not shy about telling us what he wants or to do. He tells Mark that he wants to go to the grocery store to buy one thing or another. He is very curious and constantly asking "mom, what is it?" He is a sponge. Soaking up the world around him and always learning.
We started the final two months of intensive treatment before he goes into maintenance. This was a horrible week with two visits to the clinic. We also started him on steriods and antibiotics. He is in pain. He wants to retreat into him room since we don't do anything medical in there. He is scared when he is not in there. He is having nightmares and not sleeping well. The chemo took Jake down. He still wants to have fun but the pain gets the best of him.
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