We are two weeks into Delayed Intensification phase of the treatment. This is the last step before he goes onto Maintenance. Maintenance will last for approximately 3 years and considered easy compaired to what he is going through right now.
Although Mark and I have dreaded this phase, our little brave man is doing very well. Jake has recently acquired a taste for Dado playing music. He wants to go see Mark play all the time. Jake also loves being on the microphone. The apple does not fall far from the tree.
During our clinic visits, Children's Mercy (CM) has a big room with lots of toys and planned craft activities. Last week they had tons of beads on the activity table. Everyone made necklaces, bracelets and key chains. Jake made a necklace and when we went back the second time, he said, "make pretty." The great thing about CM, they treat children holistically.
We have another treatment on Monday. This time only chemo through his port. No spinal tap. However, we do start the steriods again. Of all the chemo the steriods are the worst because it makes Jake crazy and then he makes us crazy. The doctor needs to consider prescribing the whole family tranquilizers during steroid week. Thank god for chocolate and wine.
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